Our Little Missionary

Rhett doesn't know it yet, but he is going to become a little missionary to pediatricians, cardiologists, friends and family.  Through his testimony, these people will see a miracle.  I believe it.  

Let me just start by saying that it is taking everything within me to not be angry, emotional and devastated.  Even though I am typing with tears pouring out of my eyes, I know that I know that my child is in the hands of the most amazing creator, healer, author and finisher.  I know that He is hearing our prayers, increasing our faith and touching Rhett's heart.  I know that Rhett will be healed.  I know it.

  I know that God does not waste our pain and He has the amazing ability to turn our pain into purpose.

That being said, our appointment at the Cardiologist was not wonderful this afternoon.  I know that they have to tell you all of the relevant information and some worst case stuff, but sheesh.  

Rhett's cardiologist, Dr. L, reviewed his echo, his chest x-ray and and EKG that they did on him today.  She said that his heart is very large on the left side and that is concerning.  She said that there was a lot of blood leaking.  She also said that looking directly above the mitral valve to see where it is leaking, there are more concerns.  Most of the time they can pinpoint a leak in a certain area of the valve, but his appears to be a broad-band leak across the entire valve.  This could mean that the valve itself is broken or not working properly.  She felt it very unlikely that this stemmed from his Kawasaki Disease, but she didn't rule it out.  

He will have another Echo in four weeks to see if the leak looks the same or worse.  If it is either of these things they will put him on some sort of blood pressure medication to do something or other (I can't remember).  It will not fix the leaking or the valve, but it will do something:).  After that, the size of his heart and leakage will be monitored to see if something more immediate needs to be done.  Mostly repair or replacement of the valve.  

There was mention of some awful things that I refuse to talk about or let get into my head and thought process.  In Jesus' name, I believe that Rhett is healed.  I refuse to believe the lie of fear!  

 during his EKG today

Specific prayer requests:

For his mitral valve to work properly, for it to pump the right amount of blood where it is supposed to go.

That the size of his heart would be normalized and corrected. 

For his overall health and protection through all of this.

The words of this song continue to play in my mind and they have been encouraging to me this past week.  It is based on Mark 4:37-41...

You faught
but you were just too weak
so you lost
all the things you try to keep
now you're on your knees, you're on your knees

But wait,
everything can change,
in a moments time you don't have to be afraid,
cause fear is just a lie
open up your eyes

And he'll break
open the skies to save
those who cry out his name
the One the wind and waves obey
is strong enough to save you

Look
now is not too late
lift up your head
let the rain fall on your face
youre not far from grace, your not too far from grace

And he'll break
open the skies to save
those who cry out his name
the One the wind and waves obey
is strong enough to save you

I know the weight of this world can take you down like gravity and I know the current of yourself can take you out, out to sea but hold on, hold on

And he'll break
open the skies to save
those who cry out his name
the One the wind and waves obey
is strong enough to save you

I just cannot thank you enough for praying!  We have received so many emails, calls and texts letting us know that family, friends and strangers all over the country are praying for our sweet Rhett.  We are so very thankful and blessed to be so covered in prayer.  

Stay tuned for Rhett's miracle!  

Blessings to you all!  

Sarah 

Childlike Faith

We were caught off guard by Rhett's Faith for his healing:)....

Mark 13-16 
People were bringing little children to Jesus for him to place his hands on them, but the disciples rebuked them. ¹⁴ When Jesus saw this, he was indignant. He said to them, “Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these. ¹⁵ Truly I tell you, anyone who will not receive the kingdom of God like a little child will never enter it.” ¹⁶ And he took the children in his arms, placed his hands on them and blessed them.

Echocardiogram Concerns

So I was totally planning to get the a-okay from our pediatrician on Rhett's recovery today...you know, like a big thumbs up stating that this whole thing is behind us.  Well, unfortunately that's not what we got.  Dr. Henley had gotten Rhett's echo results from the cardiologist and there are some concerns.

Rhett's actual diagnosis on his heart is Mitral valve disorder.  Basically his mitral valve is leaking.  This valve is located between the 3rd and 4th chambers of the heart and takes the blood from the third to the fourth chamber (from what I understand).  When it goes from the third to the fourth, his is pumping some of it back into the third chamber instead of relocating it to the fourth.  Dr. H said it is not uncommon for kids to have mitral valve disorders, but 99% of the time they are classified as mild and they outgrow the problem.  Rhett's is classified as severe.

We don't know how much is leaking and how much is making it where it is supposed to go. We don't know what will fix this or what can be done to remedy the problem.  I'm not really wanting to research this right now for fear of what I might find, or what may scare me more than necessary at this point.  We will meet with a pediatric cardiologist next week to find out more about what needs to happen and what all of this means.

At the beginning of our conversation Dr. Henley thought this was unrelated to the Kawasaki disease.  He thought this was possibly a birth defect that wasn't detected until now.  Then, he checked Rhett's heart with the Stethoscope and picked up a murmur, which he never had before.  He checked the hospital records from this weekend to see his vitals and they also showed no murmur.  This led him to believe that this possibly is a result of the Kawasaki illness, but he can't conclude that for sure.  One thing is for sure, our doctor is the most thorough doctor I know, so if there had previously been a murmur, he would have caught it.  I guess when you detect a murmur you go and get and echo done to find out what is causing it.  Since we already had the echo we know the cause of the murmur.

We continue to have faith and believe that Jesus will heal our sweet boy.  Completely heal him.  He doesn't do things halfway, so I believe that Rhett will be healed.  Healing could mean several different things, but I am believing for the picture of health as an end result of whatever is in-between.  We definitely appreciate continued prayer as we walk through this next step on this journey with Rhett.

Thank you for praying!

One of our favorite new things Rhett is saying is "No-fing".  When we were in the hospital we would ask him something like, "Are you feeling okay?" or "do you want to eat?" and he would just say, "no-fing" 'Nothing' totally doesn't make sense, but he knows what he's talking about.  Last week when I would try to get him to take his medicine he would very politely say, "no thank".  It was pretty cute, especially when he would get angry from all of the asking and I would get a very agitated "NO THANK!".

Matthew 11:28-30

 “Come to me, all you who are weary and burdened, and I will give you rest.  Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”

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